A watered-down tiger mom of 3 cubs with special needs from Connecticut USA!
Quinn does not take medication very well. She’s rare. None of the parents in my epilepsy support group have this problem. NONE! Our neurologist also has the same experience with her patients. Her kids typically take their meds just fine. So we are pretty much left on our own to figure this part out. And we are still figuring it out but perhaps some of our lessons may be of helpful to you.
After 4+ years of managing Quinn’s medications, we’ve got a system that has worked well for our family. In the early years, Quinn’s seizure medication would change every other week so we were constantly titrating (building up or weaning down) medication. We must have went through five different medications the first year. It was a rollercoaster journey because we would slowly build up the medication only to discover a bad side effect and have to slowly bring down the medication. Seizure medication needs to be slowly weaned from the system or it could result with more seizures. On top of that, most of time the medication did very little, if nothing, to control her seizures.
Our system is not perfect and it is constantly evolving as we discover new products or tricks. Hopefully, this will inspire you to develop a system that works for your family.
Continue reading “Prepping meds”
For the first year of Quinn’s life, everything felt more than perfect. We looked like we were rocking life and living the dream. I got a promotion at work. Mike’s start up company was doing well. Ty was rocking Montessori school. Quinn was such a sweet and chill baby. We looked as if life couldn’t get any better.
Continue reading “When everything changed…”