On August 2018, Quinn was on the Keto diet for about 6 months to see if it could improve her seizures. If restricting a little human from indulging in her favorite pasta and all things delicious and carbie sounds like a nightmare to you, your feelings are warranted. However, it is not as disastrous as I had imagined. Here are some tips and tricks we learned in that keto chapter. I’ve even included an easy-cleanup Keto whipped cream recipe at the end that my cubs LOVE to this day! If you have cubs you need to fatten up, don’t miss the recipe!
Continue reading “Keto diet + young kids”Parent hack: Getting young kids to take medicine
Quinn does not take medication very well. She’s rare. None of the parents in my epilepsy support group have this problem. NONE! Our neurologist also has the same experience with her patients. Her kids typically take their meds just fine. So we are pretty much left on our own to figure this part out. And we are still figuring it out but perhaps some of our lessons may be of helpful to you.
Continue reading “Parent hack: Getting young kids to take medicine”Parent hack: Seat belt cover
As all baby cubs do, Quinn has outgrown her car seat and is now ready for a booster seat. She loves the booster seat! I imagine it’s more comfortable for her bigger size. But above all, she loves how she can unbuckle herself! This is great… until it’s not! That’s when I discovered this tool!
Continue reading “Parent hack: Seat belt cover”Real talk: birthdays and special needs
Quinn turned 6 last week!! This year seemed a lot harder for me than the previous years.
Continue reading “Real talk: birthdays and special needs”Prepping meds
After 4+ years of managing Quinn’s medications, we’ve got a system that has worked well for our family. In the early years, Quinn’s seizure medication would change every other week so we were constantly titrating (building up or weaning down) medication. We must have went through five different medications the first year. It was a rollercoaster journey because we would slowly build up the medication only to discover a bad side effect and have to slowly bring down the medication. Seizure medication needs to be slowly weaned from the system or it could result with more seizures. On top of that, most of time the medication did very little, if nothing, to control her seizures.
Our system is not perfect and it is constantly evolving as we discover new products or tricks. Hopefully, this will inspire you to develop a system that works for your family.
Continue reading “Prepping meds”When everything changed…
For the first year of Quinn’s life, everything felt more than perfect. We looked like we were rocking life and living the dream. I got a promotion at work. Mike’s start up company was doing well. Ty was rocking Montessori school. Quinn was such a sweet and chill baby. We looked as if life couldn’t get any better.
Continue reading “When everything changed…”