After 4+ years of managing Quinn’s medications, we’ve got a system that has worked well for our family. In the early years, Quinn’s seizure medication would change every other week so we were constantly titrating (building up or weaning down) medication. We must have went through five different medications the first year. It was a rollercoaster journey because we would slowly build up the medication only to discover a bad side effect and have to slowly bring down the medication. Seizure medication needs to be slowly weaned from the system or it could result with more seizures. On top of that, most of time the medication did very little, if nothing, to control her seizures.
Our system is not perfect and it is constantly evolving as we discover new products or tricks. Hopefully, this will inspire you to develop a system that works for your family.
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